Yes, I did keep a journal of my physical symptoms. I can look back and pinpoint days I felt certain ways but I will summarize.
First we spent a week in the cold mountains with our families for Christmas and it was spectacular. So much fun, laughter and love flowing. I had a few days of weakness and fatigue and I opted out of several activities. It was easy during this week, however, to take breaks in bed as our bedroom was directly off the living area and there weren't many expectations from the week other than relaxing with family. The one day we ventured into town the cold and short walk completely did me in and by the end of lunch I was shaking and tingling- a sure sign my body has had enough and generally my "lay down or I'll make you" warning from it.
All in all that first week was what was expected and while really cold, the dampness and temperature changes of our old town we're not present. It may have only gotten to 51 during the day but it would still be 46 at night for example. As we've determined temperature change is worse than consistent cold by far. I was actually impressed by my body's strength in this climate, not great but not as bad as expected. But the heat was on and our shower had a heated lamp- these things make a big difference in sudden temperature adjustments.
I will not count, but will make note of, the dizziness and nausea portion of our trip as that is a direct correlation to my meds and happens in every climate and state… so let's say the drive down the windy road was unpleasant.
The second part of our trip was also filled with laughter and love and a whole lot more activity. We stayed in our old town with a good friend. Attempting to see so many people in one visit may have been overly ambitious.
My body held up for a late NYE but needed a day on the couch the entire next day. I was able to drive one day to visit family, who had a preheated throw on the couch, but by the end the pain, dizziness and nausea were severe.
I pushed through a day I shouldn't have to make a promised get together only to be flattened even worse the next day unable to see a dear dear friend. The rest of the trip- three more days- was incredibly low key couch bound and unable to see another dear friend for coffee as hoped. Both of those I regret and am heartbroken about.
So for those keeping track I got about 9 really good days out of the 17.
As for a symptom score: one thing I hadn't even realized was that the numbness and nerve pain in my left leg has pretty much gone away in Hawaii. It came right back in California again! Back to 4 pairs of socks on my left foot. I was also back to dreading showers because of the cold and needing Gatorade more for my blood pressure. I was unable to stay outside (as I can for flag football games here), I was unable to help much at the houses we were staying at, etc etc.
It's not an accurate representation for my scientific mind because the kids weren't in school and didn't need a schedule, my friends came to me for the most part- couch, PJs and all- and I had no real obligations and responsibilities except to things I really wanted to do. That adrenaline rush always really helps. But for an overall trip it definitely affirmed that I am better here sometimes a lot and noticeable, sometimes only in some ways or slightly. But even just 10% is better right? Hopefully that realization will help assuage the overwhelming mom guilt when it pops up...
So I can safely say we were all happy to be back in the warmth, but none more than my body.
No comments:
Post a Comment