It's like a bad codependent relationship. I need to just break it off. As soon as I can walk away.
Contrary to what some might think, people who are stuck in bed for physical reasons get really really bored. It's not like when you have a cold or the flu so you WANT to be in bed all day and it feels good to just veg.
No no no, [in my case] your brain wants to go do stuff and your body laughs and says "stop asking to get out of this bed or you will be punished".
So I get bored, yet I am too weak and fatigued (not sleepy) to get up and do anything. Oh my brain and body like to trick me and after resting a while it says "go ahead, get up, what could go wrong?" Oh, lots. Lots can go wrong. And it usually sends me right back to bed, only now in more pain and more symptomatic because I foolishly thought I could do something crazy like take my kids to school and stop for coffee on the way home for 2 mins. What on Earth were you thinking silly girl!?
It's quite an annoying conundrum I tell ya. I feel like I'm trapped in my body, sometimes barely able to use my hands enough to type or use my phone. Or to use my brain enough to even do the things I COULD do from my bed.
Sometimes I'm tired too, usually from the meds. I'm starting to almost wish for those days sadly, because those days I don't mind being stuck in bed as much. But, when your brain is telling you all the stuff you have to do and want to do but your body can't even lift an arm or leg, it is as frustrating and heartbreaking as you think, and also frankly just boring!
I know lots of folks resist them, but is a wheelchair or scooter an option? I have a colleague in a similar position as you and she sporadically uses a scooter.
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