To start on a good note😊
I went to the neurologist today and when I got out of the elevator this was right in front of me. It made me smile and it made me completely change my Outlook on the appt I was going to.
Man, it's true isn't it? I'm so thankful for the woman who wrote this on her white board today.
So neurologist. He wasn't Ryan Gosling, but he was a very nice man who really spent time explaining and theorizing with us. (My darling hubs went with me today! He said he'd hide in the bushes if I didn't let him go. Ain't he sweet?)
Anyway, Dr Garcia. Long story short we left there with orders for an EEG, another MRI, blood tests, an EMG and a new medication to hopefully help the twitching, pins and needles and painful numbness (imagine sticking your foot in a bucket of ice water- numb pain).
No diagnosis, more confusion, so now we're on the road to testing for "rare diseases", cuz if someone is going to have a super rare disease..... Well yeah.
But check out the insane instructions for an EEG!!
Yes that does say that I can only sleep tonight from 12-5am, cannot drink any coffee (!!🤬), And have to wash my hair but use no product....
Gonna be fun for those poor lab people who get to see me with big frizzy hair on 5 hrs of sleep with no coffee!! I apologise in advance.
So, until all of these new tests and visits tell us something this is still my status:
But....
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