So, 4.5 weeks and counting and this head of mine is still threatening to explode and/or just float away. The rest of my body feels as though it just won't work and all it wants to do is sleep. You know, the standard feeling sick routine. But it just won't end!
The score:
1. 7 day course of antibiotics
FAIL
2. Postponement of immunosuppressant infusion #1
3. Addition of Sudafed, Flonase, Mucinex, saline spray.
4. Postponement of immunosuppressant #2
5. Addition of broad spectrum antibiotic-6 week course! 8 days in...
6. Visit to rheumatologist for a discussion about changing the immunosuppressant I love so dearly and that actually make me feel better.7. Postponement of immunosuppressant (#3) until sinus infection symptoms are gone, then we will discuss the new medication (this is my 5th sinus infection in 19 months apparently, and my Drs don't like that much)
8. Now just yesterday a referral for a head CT scan and a referral to the head and neck surgery Department, which is exactly what we've been trying to avoid all this time...
Status:
Still sleeping daily at 7pm until 7am. Still feel like I'm floating and that my head will explode if I move it quickly, and bad things happen if I open my eyes all the way. I have a constant head and neck ache and zero appetite.
But, I'll get you sinus infection if it's the last thing I do!
No comments:
Post a Comment