So how did we end up here?
Living in unpredictable cold weather was making so many things so much worse. W
have other reasons as well , but the thing that started it all was being told "it's probably not ALS, I'm pretty sure it's MS".
'Probably'? 'Pretty sure'? These phrases made us take a step back and take a serious look at our life.
We decided if it was ALS we were travelling the world as long as I could. If it was MS we were moving to have a simpler life where my husband could be home more and we could all enjoy each other.
The testing for MS went on seemingly forever, and when it ultimately came back negative we started to realize that this was just our life now diagnosis or not. The symptoms didn't magically disappear when why they said it wasn't MS. And we decided it was time to make a change anyway to live a simpler life where we could enjoy each other and our kids more. Possibly help my health and enjoy whatever time we have left on this planet.
I've always wanted to live in Hawaii. Since I was 13 years old and my parents took us to Maui for the first time it has been a goal. I remember saying even at 13 "I'm going to live in Hawaii someday and be a scuba instructor ".
Being scared you don't have much time left really re-prioritizes your life. Finding out it wasn't a death sentence but a chronic problem that could get worse didn't change things back.
But living your dream does take on a whole new weight. What if it sucks? I've been dreaming of this for 30 years! What if I ruin my kids lives moving for MY health?
We landed on moving to Oahu through a circuitous route involving Costa Rica, The Carolinas, Texas, the big island of Hawaii and then finally Honolulu. It just has more to offer young kids growing up and most importantly the best access to some of the best healthcare in the country. Yeah, Hawaii, who knew right? From there it was a five day trip with 6 hr days in the car visiting seemingly every town on the island to find where we belonged. When we hit the town of Kailua we just knew. We still gave other places a chance but nothing really felt like home like this small beach town.
So here's hoping! Taking off from your very comfortable life with no job, no place to live and all of your stuff on a boat in the Pacific really makes life itself stand out. We've got nothing but the clothes in our suitcases and a desire to live a fulfilling and healthier life.
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