Eggs with stitches

Persistent postural perceptual dizziness (PPPD), sensory ataxia, orthostatic hypotension, dysautonomia, pots.
Alllll of those added at stanford and not one has a proven treatment other than the pppd.
They're going to give me Adderall or Ritalin just to help with energy. The med to raise my BP seems to be helping the symptoms it should help. Otherwise "sorry, there's nothing we can do."
Super specialist sent his eval to my drs and we will go from there. 

 The orthostatic hypotension is being helped by midodrine to increase my BP plus hydration packs and 12,000 mg of sodium. Yep. I can't eat that much so I take salt tablets. 

For the persistent postural perceptual dizziness (PPPD), which is sort of like chronic vertigo, there is something called vestibular rehab, which means they need to retrain my brain that the world isn't moving even though I feel like it is. This explains why I randomly fall over, have no balance or equilibrium and am dizzy when in a car or moving a lot.

The sensory ataxia (with my eyes closed I have no idea where my body parts are in space and I can't feel all of my feet) there's nothing to be done but honestly that's not a big concern unless I have to take a drunk test. Cannot touch my nose or walk a straight line lol. Mitch said it was painful to watch me try to grab one hand with the other with my eyes closed and miss by a good 6 inches.

But the main one that he theorized could be causing the severe fatigue and body failure and weakness is myalgic encephalitis/ chronic fatigue syndrome. There's no fda approved treatment for it so my Drs will give me stimulants like Ritalin or Adderall just help the symptoms. The main cause as far as they know is inflammation of the brain. Nothing you can do about an inflamed brain apparently but it explains why avoiding inflammatory foods like gluten, dairy and sugar has helped so much. I don't actually meet all of the criteria, but he seemed to think that's what it could be.  It's basically being sentenced to bed for the next 30 yrs. I was really trying to avoid this particular diagnosis, and I honestly do not think this is it. Like I said I don't meet the criteria, plus my neurologist already told me that's not it and my fatigue can be explained by the dysautonomia/pots. The reason for the fatigue isn't my main concern. A treatment is. So the prescription uppers like adderrall or ritalin should help as well as the fact that he authorized hydration by IV when needed. 

I had hoped that he would have answers regarding treatment but all he did was confirm my current diagnoses, add a few and say basically that what I was doing/told to do by my kaiser Drs was what I should be doing. 

So, I realize now it was silly of me to put so much pressure on this appt. I was devastated when we left, but now I see that it confirmed that my Kaiser Drs are awesome and that all Drs are just human.