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Day 1 pretty self explanatory |
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Day 2 cuz yep it was our 10 yr anniversary |
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Day 3- just me and my bucket! |
So sometimes remicade does this thing where it makes you really sick for several days after an infusion. It doesn't always do it, but I had the golden ticket this time and have been sick in bed for 3 days.
The kicker is that today was my sister in laws birthday party. I showered, feeling very much like I would pass out so I used my trusty shower chair! I got dressed, though at that point the dizziness was so bad I told M "I've never fainted, but I would imagine it feels a lot like this right before it happens", so my outfit ended up being cut offs and 2 tank tops because I didn't like the first one but didn't have the strength to take it off. Despite this less than stellar beginning to the evening, and having eaten nothing but bananas and gluten free donut holes in 2 1/2 days, I was determined to go. M walked me to the car fearing I would pass out (tried to shake him off but he laughed because I'm so dizzy/sick), and after he grabbed me a bucket and towel (I think he's traumatized by the time I decided I was fine to go to the dog show with my kids and him the day after remicade and ended up puking on the side of the freeway...... but maybe I'm wrong) We were on our way! Aaaand I threw up before we hit the bridge which is like 3 miles away. He drove me back home with both of my kids crying that they wanted me to go and they didn't want to go without me (knife meet heart). I had to walk away from their tears because I was just so sick. Yes that does suck as much as it sounds.
I spent the rest of the day tucked in bed with my bucket friend. As long as I don't eat and lie perfectly still not moving any more than necessary the stupid dizziness subsides and I don't puke.....
Can't wait to see what tomorrow brings! Usually 2-3 days is my recovery time in these instances so as long as I can get some food in me at some point tomorrow should be fine. I really hope so because we're supposed to take the kids to the pool and I really can't handle breaking their hearts twice in the same weekend.
And today was an example of why I hate this so much and what is the very worst part of this disease. I let down people I love left and right.
I think that about covers it today.
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